A Birthday Worth Celebrating

I was roaming around the web here and there and came across another blog: Living With DMD - Not The End. (Links here and on my side bar.) Chris Webb, a fellow, who's been blogging for a while, has dmd. He turned 41 yesterday.

There was no way to email him to say 'Hi - What's Up?' So I thought I'd say 'Happy Birthday' with a blog :)!

So, Chris Webb from Boston, 'Happy 41st Birthday. May your year be one great adventure.'

AVI BioPharma Announces Treatment of First Patient in Systemic Clinical Trial of AVI-4658 for Treatment of Duchenne Muscular Dystrophy

Another scoop from Jon! Thanks Jon.

Click here to see the Press Release from AVI BioPharma.

Parents, be aware that this trial is in the United Kingdom and the dose is homeopathic. See ClinicalTrials.gov for trial details.

AVI BIOPHARMA NEW EXON SKIPPING CLINICAL TRIAL

Hello Folks

And thanks to Jon for the news! I'm trying to get more information and will post as quickly as I can.

Here is a News tidbit and the link.

News...

AVI BioPharma has started a clinical trial of their AVI-4658 Morpholino oligo targeted to block splicing of exon 51 in the human Dystrophin transcript. This is an experimental therapeutic for some mutations causing Duchenne muscular dystrophy, designed to restore the reading frame and ameliorate the effects of a frame-shifting mutation. This is a systemic study involving intravenous injection of an unmodified Morpholino (note: Morpholinos are also called PMO, an acronym for phosphorodiamidate Morpholino oligomer).


ClinicalTrials.gov